In this section:
The DSi Network is the global network of people with Down syndrome and their families. Together, we speak up for the human rights of all people with Down syndrome around the world.
Our vision is a better world where all people with Down syndrome are fully included in society.
The network has more than 150 member organisations working in 113 countries.
Find and connect with network members
The network is coordinated by the DSi staff team. The staff team is governed by a Board of Trustees and guided by a team of Ambassadors.
The DSi staff team facilitates network meetings and leads research, program work, and international campaigns.
Together we can make the world a better place for everyone!
What our members say:
Membership of the DSi network creates opportunities for us to share information and resources and collaborate on projects and presentations." - Down Syndrome Australia
"Through the DSi network, we are connected with like-minded partners that we work with to share best practices so we can support our community." - National Down Syndrome Society, USA
Being part of the DSi network allows us to connect with other organisations and learn about the challenges that they also face. It is reassuring to have that support." - Asociacion Guatemalteca para el Síndrome de Down, Guatemala
"Being a member of the DSi network gives us access to good practices and new information in the fields of Down syndrome from around the world." - Turkiye Down Sendromu Dernegi, Turkey
"The DSi Network has helped us in our successful advocacy and activism for a more inclusive society." - Down Syndrome Family Network, Trinidad and Tobago
"As a Country representative, we are proud to be a part of the DSi Network and to benefit from the advantages offered to us all." - Down Syndrome Madagascar
DSi's programme work is focused on 4 key areas:
Inclusive education - advocating for ALL children to have access to inclusive and equitable quality education to enhance their opportunities and quality of life.
Inclusive employment - advocating for ALL people to have access to employment in inclusive workplaces.
Inclusive health - advocating for ALL people to have access to the highest attainable standard of healthcare provision where they live.
Inclusive organisations - advocating for ALL organisations to include everyone in their decision-making.
World Down Syndrome Day (WDSD), on 21 March, is a global awareness day which has been officially observed by the United Nations since 2012.
Each year we deliver a network campaign. Network members work together to deliver a powerful message to raise awareness and make a change in the world.
DSi hosts events at the United Nations in New York and Geneva.
Member organisations are invited to participate in the planning and execution of these activities.
Check out our latest WDSD activities:
World Down Syndrome Day
October was first designated as Down Syndrome Awareness Month in the 1980s and has been recognized every October since.
It is a time to celebrate people with Down syndrome and make others aware of their abilities and accomplishments.
We support the DSi Network by promoting its activities and campaigns.
The World Down Syndrome Congress (WDSC) is an unmatched opportunity for people with Down syndrome, families, advocates, professionals and researchers to meet and share knowledge, insight and experience with others from different countries and environments worldwide. Those who attend once rarely miss it again!
We are very grateful to our national hosts, who put in a huge amount of work to make WDSC happen.
Down Syndrome Australia invites you to the 15th World Down Syndrome Congress in Brisbane, in July 2024!
VISIT WDSC 2024 WEBSITE
There are two types of members:
Network members have the best knowledge of the laws, systems, and available support in their country. We direct individuals and families to network members to get this local information.
Network members are the eyes and ears of their country or region. They tell us what life is like for people with Down syndrome living in their country. This helps us to focus our work where it is most needed.
Network members are in the best position to bring about change in their country. We support network members to speak up through national and international campaigns.
The DSi Programme team works with network members on specific projects, e.g. starting a self-advocacy group.
Network members are invited to attend meetings with the DSi staff team and other network members. This might be to discuss a particular project or campaign.
We send surveys to network members to gather information about the situation in their country.
Network members are invited to attend training sessions to help increase the capacity of their organisation.
This is an opportunity for network members to meet with a member of the DSi staff team to talk about the organisation's work. We offer support and advice on developing the capacity of the organisation and activities. This is currently available for Representative members only.
Network members have opportunities to work with the DSi Programme team and other members on joint projects.
Network members are invited to participate in international advocacy activities, including speaking at the United Nations.
Network members are invited to participate in international campaigns. We provide campaign messages and resources.
Members may wish to share these resources with their membership. If you wish to translate these into a local language, please get in touch.
We also have a YouTube channel with useful videos on a range of topics:
DSi on YouTube
Organisations that want to join the DSi network must meet the membership criteria. If your organisation meets these criteria, you can apply for membership.
You can find the membership criteria and membership application form on this page:
ORGANISATION MEMBERSHIP CRITERIA
On World Down Syndrome Day 2024, we will launch this new project to gather evidence about health equity for people with disabilities and bring about urgent change.
DSi is supporting self-advocates with intellectual disabilities to improve Bridge training - a program that helps advocates speak up for the rights of people with disabilities.
We are delighted to share our brand new strategy which will guide our work for the next 10 years.
Down Syndrome International was established in 1993. This year we celebrate 30 years of inclusion advocacy!
The congress team welcomes people with Down syndrome, academics, practitioners, family members and support people to submit a summary of what they would like to present at the event.
We are training a new group of self-advocates with Down syndrome and intellectual disabilities, to become consultants on inclusive organisations.
The Down's Syndrome Association is building on our Inclusive Education project to share resources to support teachers, SENCOs, school leaders and people who have Down’s Syndrome and their families.
We were pleased to collaborate with the World Federation of the Deaf and Inclusion International on this new position paper.
Self-advocates will share their experiences and expertise, and Permanent Missions will outline their approaches to making communication accessible.
The Zero Project Call for Nominations 2024 (#ZeroCall24) is focused on Inclusive Education and ICT.
The National Democratic Institute has launched the Equal Rights in Action Fund to provide small grants to local organizations around the world who work to promote and defend the human rights of marginalized groups.
We have developed this guide to help those supporting people with Down syndrome using a team management app.
We have collaborated with an international team of cardiologists (heart experts) to write a review of the recommended treatment of cardiovascular conditions in people with Down syndrome.
This webinar discusses a case study report which examines the barriers faced by persons with intellectual disabilities in accessing employment in Uganda.
This webinar discusses a case study report which examines the barriers faced by persons with intellectual disabilities in accessing employment in Kenya.
The Listen Include Respect guidelines will help organisations of all types to be more inclusive of people with disabilities.
Meet Kami - the world's first virtual influencer with Down syndrome, on a mission to revolutionise the digital world!
Down Syndrome Australia invites you to the 15th World Down Syndrome Congress in Brisbane. Register today!