Right now, there are more self-advocate leaders than ever working for change. But we know people with an intellectual disability are often still not included meaningfully in the work that affects them.

Down Syndrome International and Inclusion International’s networks are working together to develop guidelines on how organisations can make sure their work is inclusive so that people with an intellectual disability can fully take part.

These guidelines will be used and endorsed by our members, development organisations, UN agencies and governments to become the international standards to support meaningful participation of people with an intellectual disability.

You can help us to create these guidelines by taking part in our survey!

**This survey is now closed**


Learn about the guidelines

Read more about the guidelines

Watch our guidelines survey launch webinar

To find out why leaders in our movement are endorsing this work, please watch this video and share with your networks:


Who is the survey for?

The survey is for anyone who has something to tell us about making the work of organisations inclusive of people with an intellectual disability. This includes:

  • people with an intellectual disability;
  • family members or friends of people with an intellectual disability;
  • colleagues of people with an intellectual disability and
  • carers or support persons of people with an intellectual disability.


Share and take part in the project

If your organisation is interested in running a consultation on #ListenIncludeRespect please let us know. We are developing information to support our members with this process:

Email Us

For regular updates about our #ListenIncludeRespect project, please sign up to our mailing list:

Subscribe to mailing list

Communications Toolkit