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  1. About us
  2. Our network
  3. Member organisations

DSi member organisations

Our network includes national Down syndrome organisations that represent their country at DSi. Many of these national organisations are also members of world regional networks, with whom we maintain strong relationships.

We encourage other Down syndrome or disability advocacy groups and those who focus on specific issues like healthcare, education, employment or other service provision, to apply to join DSi as affiliate members. 

Contact details for our Representative members can be found on our Global Contacts maps.

If you are part of an organisation that would like to apply for membership please visit our Membership page.


By region

Organisation members in Africa

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Botswana           

Representative Organisation     

Down's Syndrome Association of Botswana

Cameroon          

Representative Organisation     

Aidrikings Foundation

Congo  

Affiliate Organisation                     

Lenire Asbl

Eritrea 

Affiliate Organisation                     

National Association of Intellectual/Developmental Disability in Eritrea (NAIDDE)

Ethiopia              

Affiliate Organisation                     

Fikir Ethiopian National Association on Intellectual Disabilities​

Ghana  

Representative Organisation     

Robb Foundation

Affiliate Organisation                     

Inclusion Ghana

Kenya  

Representative Organisation     

Down Syndrome Society of Kenya

Liberia 

Affiliate Organisation                     

My Heart's Appeal Inc

Libya    

Representative Organisation     

Libyan Down Syndrome Association

Madagascar       

Representative Organisation     

Down Syndrome Madagascar

Mauritius           

Representative Organisation     

Down Syndrome Association Mauritius

Morocco             

Representative Organisation     

Association Marocaine de Soutien et d'Aide aux Personnes Trisomiques (AMSAT)

Nigeria

Representative Organisation     

Down Syndrome Foundation Nigeria

Affiliate Organisations                      

Larger Than I Developmental Foundation

Moyinoluwa Rainbow Foundation

Rwanda               

Representative Organisation     

Rwanda Down Syndrome Organisation (RDSO)

South Africa      

Representative Organisation     

Down Syndrome South Africa

Tanzania             

Representative Organisation     

Pearl of People with Down Syndrome Foundation

Affiliate Organisation                     

Elimisha

Morogoro Saving the Poor Organization

Togo     

Representative Organisation                     

APAPE - Down Syndrome Togo

Tunisia

Affiliate Organisation                     

AMED (Association Mon Enfant est Different)

Uganda

Representative Organisation     

Down Syndrome Foundation Uganda (DOSFU) previously known as The Uganda Down Syndrome Association (TUDSA)

Affiliate Organisation                    

Angel's Center for Children with Special Needs

EmbraceKulture

Rowan's Down Syndrome Awareness Center

Zimbabwe         

Representative Organisation     

Zimbabwe Down Syndrome Association

Published: 17th May, 2020

Updated: 27th September, 2021

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Organisation members in Asia Pacific

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Australia             

Representative Organisation     

Down Syndrome Australia

Affiliate Organisation                     

e.motion 21

Bangladesh       

Representative Organisation     

Down Syndrome Society of Bangladesh

Affiliate Organisation                     

PAROMITA (Performance Activity & Rehabilitation of Mentally(IQ) Impaired Talent's Association)

Bhutan

Affiliate Organisation                     

Ability Bhutan Society

China   

Representative Organisation     

Macau Down Syndrome Association

Affiliate Organisation                     

Shanghai Hope Star Public Welfare Development Center

Hong Kong, S.A.R, China              

Representative Organisation     

Hong Kong Down Syndrome Association

India     

Representative Organisation     

Down Syndrome Federation of India

Affiliate Organisation                     

ALAN T21 Welfare Trust

Parents of Down Syndrome

Indonesia           

Representative Organisation     

Indonesia Down Syndrome Care Foundation (YAPESDI)

Affiliate Organisation                     

Ikatan Sindroma Down Indonesia (ISDI)

Japan   

Representative Organisation     

Japan Down Syndrome Society (JDS)

Malaysia             

Affiliate Organisation                     

Kiwanis Down Syndrome Foundation

Maldives            

Representative Organisation     

Beautiful Eyes Down Syndrome Association

Mongolia           

Representative Organisation     

Down Syndrome Association Mongolia (DSAM)

Myanmar           

Representative Organisation     

Myanmar Down Syndrome Association

Nepal   

Representative Organisation's   

Down's Syndrome Association of Nepal (DSAN)

Down Syndrome Society Nepal

New Zealand    

Representative Organisation     

New Zealand Down Syndrome Association

Pakistan              

Representative Organisation      

Karachi Down Syndrome Program

Pakistan Down Syndrome Association (PDSA)

Philippines        

Affiliate Organisation     

Down Syndrome Association of the Philippines, Inc.

Singapore          

Representative Organisation     

Down Syndrome Association Singapore

South Korea      

Representative Organisation     

Korea Down Syndrome Society

Sri Lanka             

Representative Organisation     

Jinendhi Resource Centre for Down Syndrome

Affiliate Organisation     

Soulink Lanka

Taiwan

Affiliate Organisation    

ROC Down Syndrome Foundation

Vietnam             

Affiliate Organisation     

My Future

Published: 18th May, 2020

Updated: 24th November, 2021

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Organisation members in Central Asia

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Armenia             

Representative Organisation     

Sun Children

Georgia

Representative Organisation     

Georgian Down Syndrome Association

Kazakhstan        

Affiliate Organisation                     

Solnechnyi Mir

Kyrgyzstan         

Representative Organisation     

Public Fund of Parents of Children with Down syndrome "Sunterra"

Mongolia

Representative Organisation     

Down Syndrome Association Mongolia (DSAM)

Russia  

Representative Organisation     

Downside Up

Affiliate Organisation                     

Regional public organization "Time of Changes"

Tajikistan           

Representative Organisation

Nazari Digar

Affiliate Organisation  

Public Organisation of Parents of Children with Down Syndrome "SiDa"   

Public Organisation Open Hearts

Turkey 

Representative Organisation     

Down Turkiye Down Sendromu Dernegi

Ukraine               

Representative Organisation     

Ukrainian Charitable Organization "Down Syndrome"

Uzbekistan        

Representative Organisation     

Downside Sport Uzbekistan

Published: 19th May, 2020

Updated: 25th November, 2020

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Organisation members in Europe

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Regional             

Affiliate Organisation                     

European Down Syndrome Association (EDSA)

Albania

Representative Organisation     

Down Syndrome Albania Foundation

Jonathan Center

Austria

Representative Organisation

Down-Syndrom Osterreich

Belgium              

Representative Organisation     

Down Syndrome Foundation Belgium

Affiliate Organisation                     

APEM T21

Downsyndroom Vlaanderen

Inclusion ASBL

Bosnia & Herzegovina  

Representative Organisation     

Udruzenje Zivot Sa Down Syndromom

Bulgaria              

Representative Organisations     

Association of the Parents of Children with Down Syndrome

Life with Down Syndrome

Croatia

Representative Organisation     

Croatian Down Syndrome Association

Cyprus 

Representative Organisation     

Pan Cyprian Down Syndrome Association

Denmark            

Representative Organisation     

Landsforeningen Downs Syndrom

Estonia

Representative Organisation     

Downi Sundroomi Uhing / Down Syndrome Association Estonia

France 

Representative Organisation     

Trisomie 21 France

Germany            

Representative Organisation     

Deutsches Down-Syndrom InfoCenter

Gibraltar             

Representative Organisation     

Down's Syndrome Support Group Gibraltar (DSSGG)

Greece

Representative Organisation     

Down Syndrome Association of Greece

Hungary              

Affiliate Organisation                     

Down Egyesület

Ireland

Representative Organisation     

Down Syndrome Ireland

Affiliate Organisation                     

The Down Syndrome Centre (Ireland)

Italy      

Representative Organisation     

Associazione Italiana Persone Down

Affiliate Organisation                     

Coordinamento Nazionale Associazioni delle Persone con Sindrome de Down (CoorDown)

Kazakhstan        

Affiliate Organisation                     

Solnechnyi Mir

Kosova

Representative Organisation     

Down Syndrome Kosova

Lithuania            

Representative Organisation     

Down Syndrome Lithuania

Macedonia        

Affiliate Organisation                     

Trisomija 21 - Skopje

Malta   

Representative Organisation     

Down Syndrome Association Malta

Netherlands     

Affiliate Organisation                     

Stichting Down Syndroom (SDS)

Norway

Representative Organisation     

Norsk Nettverk for Down Syndrom (NNDS)

Poland 

Affiliate Organisations                     

Ja Tez

Jeden Swiat

Zespoldowna.info

Portugal              

Affiliate Organisation                     

Pais21

Romania             

Affiliate Organisation                     

Asociatia Down Bucuresti

Asociatia Ioana-Maria

European Centre for the Rights of Children with Disabilities

Russia  

Representative Organisation     

Downside Up

Affiliate Organisation                     

Regional public organization "Time of Changes"

Slovakia              

Representative Organisation     

Spolocnost' Downovho Syndromu na Slovensku

Spain    

Representative Organisation     

Down Espana

Affiliate Organisation                     

ASNIMO

Sweden              

Representative Organisation     

Svenska Downforeningen

Switzerland       

Representative Organisation     

Insieme 21

Avventuno

Affiliate Organisation                     

Light for Sight Foundation

Turkey 

Representative Organisation     

Down Turkiye Down Sendromu Dernegi

Ukraine               

Representative Organisation     

Ukrainian Charitable Organization "Down Syndrome"

United Kingdom              

Representative Organisation    

Down's Syndrome Association (UK)

Down's Syndrome Scotland

Affiliate Organisation                    

Cheshire Down's Syndrome Support Group

Down Syndrome Extra 21

Down Syndrome Medical Interest Group UK and Ireland (DSMIG-UK)

Down Syndrome Research Foundation UK

Down's Heart Group

Sports Union for Athletes with Down Syndrome (SU-DS)

Published: 20th May, 2020

Updated: 8th February, 2022

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Organisation members in Middle East

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Bahrain

Affiliate Organisation                     

Maan Center for special education

Iran       

Representative Organisation     

Aseman Nili Down Syndrome Association

Affiliate Organisation                     

The Down Syndrome Association of Gilan

Iraq       

Representative Organisation     

Down Syndrome Association of Iraq (Hiba Centre for Down Syndrome)

Israel    

Representative Organisation     

Yated Down Syndrome Parents Association

Jordan 

Representative Organisation     

Jasmine Association for Children with Down Syndrome

Lebanon             

Representative Organisation     

Lebanese Down Syndrome Association

Affiliate Organisation                     

National Rehabilitation and Development Center (NRDC)

Oman   

Representative Organisation     

Oman Down Syndrome Association

Palestinian Territory     

Representative Organisation     

Al-Raheem (Down Syndrome Friends) Association

Affiliate Organisation                     

Right to Live Society

Qatar    

Representative Organisation     

HOPE Qatar Center for children with special needs

Saudi Arabia     

Affiliate Organisation                     

Werathah

Help Center

United Arab Emirates   

Representative Organisation     

Emirates Down Syndrome Association

Yemen

Representative Organisation     

Yemeni Down Syndrome Society (YDSS)

Published: 21st May, 2020

Updated: 15th September, 2022

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Organisation members in North America

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Bahamas             

Representative Organisation     

The Bahamas Down Syndrome Association and Center

Bermuda            

Representative Organisation     

Bermuda Down Syndrome Support Group

Canada

Representative Organisation     

Canadian Down Syndrome Society

Affiliate Organisation                     

Down Syndrome Resource Foundation

T21 Association Ouest Africaine

United States   

Representative Organisation     

National Down Syndrome Society (NDSS)

Affiliate Organisation                     

Alexander's Angels, Inc.

Down Syndrome Affiliates in Action

LuMind IDSC Foundation

National Down Syndrome Congress (NDSC)

San Diego Down Syndrome Organisation

Published: 22nd May, 2020

Updated: 25th November, 2020

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Organisation members in South and Central America

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Argentina           

Representative Organisation     

Asociacion Sindrome de Down de la Republica Argentina (ASDRA)

Brazil    

Representative Organisation     

Federacao Brasileira das Associacoes Sindrome de Down

Affiliate Organisation                      

Instituto Alana

MetaSocial Institute

Movimento Down

Chile    

Representative Organisation     

Fundacion down 21 Chile

Affiliate Organisation                     

Pro Inclusion Rayos de Sol

Colombia           

Representative Organisation                     

Fundacion Sindrome de Down del Caribe (Fundown Caribe)

Costa Rica          

Representative Organisation     

Fundacion El Futuro es de Todos

Dominican Republic      

Representative Organisation     

Asociacion Dominicana de Sindrome de Down

El Salvador         

Representative Organisation     

Fundacion Club de Amigos Especiales a Distancia de El Salvador (FUNCAEDES)

Grenada             

Representative Organisation     

Grenada Down Syndrome Association

Guatemala        

Representative Organisation     

Asociacion Guatemalteca para el Sindrome de Down

Affiliate Organisation                     

Fundacion Margarita Tejada Para Sindrome Down

Honduras           

Representative Organisation     

Integrar, Fundacion Sindrome de Down, Honduras

Affiliate Organisation                     

Centro de Educacion Activa

Jamaica               

Representative Organisation     

Jamaica Down's Syndrome Foundation

Mexico

Representative Organisation 

Fundacion John Langdon Down

Affiliate Organisation 

Comunidad Educativa Incluyente

Taller de Expresion y Desarrollo Integral A.C. (TEDI) Trisomia 21 A.C.

Nicaragua           

Affiliate Organisation                     

Fundacion 21 Sindrome de Down Nicaragua

Panama

Affiliate Organisation                  

Fundacion Down Panama

SD Padres en Accion

Paraguay            

Affiliate Organisation                     

Asociacion de Padres de Personas con Sindrome de Down de Itapua

Fundacion Saraki

Peru     

Representative Organisation     

Sociedad Peruana de Sindrome Down (SPSD)

Affiliate Organisation                     

Asociacion Proyecto Yannick

Trinidad and Tobago     

Representative Organisation     

Down Syndrome Family Network

Venezuela         

Representative Organisation     

Asociacion Venezolana para el Sindrome de Down (AVESID)

Published: 23rd May, 2020

Updated: 26th August, 2021

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