We provide parents with emotional support and accurate information about Down syndrome to make sure they are ready to support and care for their child with Down syndrome.

The challenge

Parents who learn that their baby has Down syndrome can feel anger, fear, sadness and many other emotions. They often do not understand what Down syndrome is and what it means for their child.

Without support parents can struggle to accept their child and to provide them with the loving, secure environment they need.

What we do

We run workshops providing parents with emotional support, information about Down syndrome and a chance to hear real life experiences of people with Down syndrome and their families. The workshops include:

  • A chance to meet and share experiences with other parents;
  • Information from key professionals about Down syndrome;
  • Testimony from adults with Down syndrome about their lives;
  • Testimony from parents with grown up children with Down syndrome.

Long term impact

Parents who were involved in the project in Peru said the workshops changed how they perceived their child's potential for the future.

Early access to support and information about Down syndrome is crucial to ensuring parents accept their baby with Down syndrome and can provide them with the love and care they need.

Example 1 - Peru

In Peru we worked with Sociedad Peruana de Sindrome Down to provide information kits and run informal welcome meetings for new parents of babies with Down syndrome.

Read more about the project here:

Peru parent support

Example 2 - Guatemala

We are working with Asociacion Guatemalteca para el Sindrome de Down to provide training and emotional support to parents of babies and young children with Down syndrome.

Read more about the project here:

Guatemala parent support

Read about our other areas of work here: