The strength of our network and our ability to represent the global Down syndrome community is enhanced by the commitment and support of our members. We could not do the work we do without our members. 

We would be delighted to hear from you if you would like to join DSi. Membership will give you opportunities to take part in our work, events and activities.

Crucially, by joining you will be supporting us to be the global voice, advocating for the rights of people with Down syndrome.


If you are an individual…

Whether you are a person with Down syndrome, a family member or associate, a professional, researcher or if you simply have an interest in Down syndrome, you can join DSi.

Join as an individual


If you are an organisation…

Our network includes national Down syndrome organisations who represent their country at DSi. Many of these national organisations are also members of world regional networks, with whom we maintain strong relationships.

We encourage other Down syndrome or disability advocacy groups and those who focus on specific issues like healthcare, education, employment or other service provision, to apply to join DSi as affiliate members. 

Organisation membership criteria

Expression of interest

Benefits of representative membership

Potential partner for DSi national and international projects
Support and advice developing the capacity of your organisation and activities
Stakeholder input from your organisation into the development of DSi activities
Stakeholder input by people with Down syndrome from your organisation into the development of DSi activities
Contact information listed on DSi's Global Contacts web pages
Potential to host the World Down Syndrome Congress (WDSC)

In addition to these benefits, representative members are also entitled to all of the benefits of our affiliate members listed below:

Benefits of representative and affiliate membership

Opportunities to actively engage in DSi's World Down Syndrome Day (WDSD) and WDSC activities

Representation internationally through DSi's membership and participation in the International Disability Alliance

Opportunity to join global network forums to share and discuss best practices and topics of importance to people with Down syndrome, advocates and professionals

Discount on WDSD merchandise

Organisation details listed on a DSi members web page

Before completing the expression of interest form please check that your organisation meets the criteria for organisation membership

Organisation membership criteria

Expression of interest