Good progress developing consensus document on cardiac disease

As part of DSi's work in healthcare, we are currently collaborating with international clinical experts to create an up-to-date review and expert consensus document on cardiac disease in Down syndrome.

This document will help health professionals around the world to better understand, diagnose, manage and care for people with Down syndrome with cardiac disease. The guidance will highlight best practice, but also acknowledge the differences that may exist between countries around the world.

Better outcomes for people with Down syndrome with cardiovascular disease

In order that this work can be useful and relevant for people with Down syndrome worldwide, a working group made up of 25 leading international specialists in cardiovascular disease and specialists in the treatment of people with Down syndrome, has been established to write and review this work.

In addition DSi has contacted all of our member organisations to put forward similar specialists from their localities, to seek comments on the relevance and importance of the proposed topic areas forming the basis of this document.

International experts and stakeholders

Once the topic areas in cardiovascular disease have been determined, evidence will be sought via a systematic review and a consensus statement for each topic area will be prepared. Provision will be made to address the different issues faced in varying health systems. Where applicable, brief recommendations will be made.

Draft for publication by the end of 2021

The aim is to produce an international consensus document to submit for journal publication before the end of 2020. Once published, we anticipate this document will have a substantial and positive impact on the care provided by health professionals to people with Down syndrome with cardiac disease.

Our work

Project updates

Read our latest project updates in our Global Support blog:

GLOBAL SUPPORT BLOG

Donate

Donate today to help us to continue our vital work:

DONATE TODAY

Latest

Announcing our new membership of PMNCH

We are proud to announce our new membership of the Partnership for Maternal Newborn and Child Health.
The Ambassador Committee

We work with a team of Ambassadors who guide our work and give us feedback.
Meetings: Running a focus group about health equity

These are meetings for people and organisations interested in running a focus group on health equity for people with Down syndrome and intellectual disabilities as part of the health equity consultation.
How to wash your hands.

Announcing our new membership of PMNCH

We are proud to announce our new membership of the Partnership for Maternal Newborn and Child Health.
Assume that I can

We are proud to have supported our network member, CoorDown, with their international awareness campaign, 'Assume That I Can'.
13th World Down Syndrome Day Conference

Join us at the United Nations in New York as we launch our new Health Equity project. Hear from self-advocates, supporters, government and UN officials and NGO representatives as they share knowledge, experience, and good practice.
Health equity

We are working with Humanity & Inclusion to find out more about health equity for people with Down syndrome and intellectual disabilities, so we know what needs to change.
The World Down Syndrome Awards

We are happy to share the 2023 World Down Syndrome Awardees. Congratulations to all!
Getting ready for a better future

We are delighted to share our brand new strategy which will guide our work for the next 10 years.
Celebrating 30 years of the DSi Network!

Down Syndrome International was established in 1993. This year we celebrate 30 years of inclusion advocacy!
WDSC 2024 - Call for presentations

The congress team welcomes people with Down syndrome, academics, practitioners, family members and support people to submit a summary of what they would like to present at the event.
State-of-the-art care for people with Down Syndrome and cardiovascular conditions

We have collaborated with an international team of cardiologists (heart experts) to write a review of the recommended treatment of cardiovascular conditions in people with Down syndrome.
A message from the President of DSi - 2022

Reflections on our achievements in 2022