We believe everyone should have the right to enjoy the highest attainable standard of health, without discrimination
This is described in Article 25 (Health) of the UN Convention on the Rights of Persons with Disabilities (CRPD).
The World Health Organization also recognises the enjoyment of the highest attainable standard of health as one of the fundamental rights of every human being.
We know people with Down syndrome do not always get the healthcare they need. There are big differences in the quality of healthcare services available to people with Down syndrome around the world. In some places, people with Down syndrome have access to the same healthcare as everyone else. In other places, they may not have access to any healthcare at all.
There is a need to change negative attitudes, tackle diagnostic overshadowing, improve access to information, and provide training on easy-to-understand communication.
The DSi network advocates for inclusive healthcare for people with Down syndrome and intellectual disabilities.
Every person should have access to the highest attainable standard of healthcare provision where they live.
For people with Down syndrome, this can be realised if:
This is what we would expect for any person.
What we are describing here is an inclusive health system, one which will deliver better outcomes for everyone.
LEARN ABOUT CARDIAC STATEMENT
LEARN ABOUT VACCINATION CAMPAIGN
We are learning all the time from our current and previous projects. In health, we are planning advocacy, training and the production of basic health resources to combat discrimination and poor health treatment and outcomes for people with Down syndrome, something which is built into systems around the world.
Learn - find out what needs to change in the world so that all people with Down syndrome are fully included in society.
Inform - tell us what life is like for people with Down syndrome where you live.
Advocate - speak up for people with Down syndrome and disabilities.
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For World Down Syndrome Day 2024, the Down Syndrome International Network calls for Health Equity for People with Disabilities. Read more
We are happy to share the 2023 World Down Syndrome Awardees. Congratulations to all! Read more
We are delighted to share our brand new strategy which will guide our work for the next 10 years. Read more
Down Syndrome International was established in 1993. This year we celebrate 30 years of inclusion advocacy! Read more
The congress team welcomes people with Down syndrome, academics, practitioners, family members and support people to submit a summary of what they would like to present at the event. Read more
We have collaborated with an international team of cardiologists (heart experts) to write a review of the recommended treatment of cardiovascular conditions in people with Down syndrome. Read more
Reflections on our achievements in 2022 Read more
Around the world, people with Down syndrome were left behind in the response to the COVID-19 pandemic. Here is what our members were doing to advocate for their rights now and into the future. Read more
T21RS have published data from a survey of nearly 2000 vaccinated individuals with Down syndrome. Read more
We present the evidence supporting vaccine prioritisation for people with Down syndrome and the tools to advocate for it. Read more
Brazilian Federation of Down syndrome Associations launches their campaign in search of prioritization of COVID-19 vaccinations for people with Down syndrome. Read more
Our statement on priority, accessibility and inclusion of people with Down syndrome Read more
Simon shares highlights of the self-advocacy activites taking place in Africa in response to the COVID-19 pandemic. Read more
Read about our work in the Journal of Congenital Cardiology. Read more
DSi’s crucial work is needed now, more than ever. The COVID-19 pandemic requires a specific and vital response by our community. Read more
We have been involved in the development of these guidelines which we hope will improve the care and treatment of children and young people with Down syndrome. Read more
We are working with international experts on an up-to-date review and expert consensus document on cardiac disease in Down syndrome. Read more