Everyone should have the right to enjoy the highest attainable standard of health, without discrimination
This is described in Article 25 (Health) of the UN Convention on the Rights of Persons with Disabilities (CRPD).
The World Health Organization also recognises the enjoyment of the highest attainable standard of health as one of the fundamental rights of every human being.
There is a pressing need to address the global disparity in services and facilities in healthcare for people with Down syndrome.
Many do not receive the quality of healthcare required to be able to lead full, healthy lives.
Negative attitudes, diagnostic overshadowing, a lack of basic information on related health conditions and a lack of good communication, combine to deliver poor health outcomes for many.
Every person should have access to the highest attainable standard of healthcare provision where they live.
For people with Down syndrome, this can be realised if:
This is what we would expect for any person.
What we are describing here is an inclusive health system, one which will deliver better outcomes
LEARN ABOUT CARDIAC STATEMENT
LEARN ABOUT VACCINATION CAMPAIGN
We are learning all the time from our current and previous projects. In health, we are planning advocacy, training and the production of basic health resources to combat discrimination and poor health treatment and outcomes for people with Down syndrome, something which is built into systems around the world.
Sign up to hear more about the work we are doing to improve quality of life for people with Down syndrome around the world.
SIGN-UP - OUR WORK
We have collaborated with an international team of cardiologists (heart experts) to write a review of the recommended treatment of cardiovascular conditions in people with Down syndrome. Read more
Reflections on our achievements in 2022 Read more
DSi is working on a new strategy for our organisation. This is essential to make sure we have a clear vision and plan for the next few years. Read more
Around the world, people with Down syndrome were left behind in the response to the COVID-19 pandemic. Here is what our members were doing to advocate for their rights now and into the future. Read more
T21RS have published data from a survey of nearly 2000 vaccinated individuals with Down syndrome. Read more
We present the evidence supporting vaccine prioritisation for people with Down syndrome and the tools to advocate for it. Read more
Brazilian Federation of Down syndrome Associations launches their campaign in search of prioritization of COVID-19 vaccinations for people with Down syndrome. Read more
Our statement on priority, accessibility and inclusion of people with Down syndrome Read more
Simon shares highlights of the self-advocacy activites taking place in Africa in response to the COVID-19 pandemic. Read more
Read about our work in the Journal of Congenital Cardiology. Read more
DSi’s crucial work is needed now, more than ever. The COVID-19 pandemic requires a specific and vital response by our community. Read more
We have been involved in the development of these guidelines which we hope will improve the care and treatment of children and young people with Down syndrome. Read more
We are working with international experts on an up-to-date review and expert consensus document on cardiac disease in Down syndrome. Read more