The Trisomy 21 Research Society (T21RS) is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome. The goal is to learn if people with Down syndrome are more vulnerable or have a different course of illness related to COVID-19 and if their illness is related to their pre-existing health profile.

We hope that this information will help identify who is at the greatest risk and how to better protect them.

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If you are a carer/family member of a person with Down syndrome who tested positive or has signs or symptoms of COVID-19 please choose a language to complete the survey:

ENGLISH

SPANISH

PORTUGUESE

ITALIAN

FRENCH

If you are a clinician who has/is caring for a person with Down syndrome who tested positive or has signs or symptoms of COVID-19 please choose a language to complete the survey: 

ENGLISH

SPANISH

PORTUGUESE

ITALIAN

FRENCH

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The survey will take about 10-20 minutes to complete.

It asks for:

1. general information about the person with Down syndrome,
2. their pre-existing conditions,
3. whether they were tested for COVID-19,
4. COVID-19 symptoms, and
5. treatments and outcome.

None of the survey data will be linked to you or the person with Down syndrome. In other words, it will be anonymous. 

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The study has undergone ethics review at the data coordinating centre in the US (Emory university), and also been registered with King's College London (MRA-19/20-18484). In addition, it has also been reviewed by the HRA, which has confirmed that it does not require NRES review, HRA or local level R&D if legitimate members of the care team would be processing the confidential patient information, and anonymising it to complete professionals’ survey responses.